On the ninth day of Christmas - An important update on the fundraising efforts of Save Our Sons through 2015

Posted by Luke Mitchell, Malcolm Campbell on 08 December 2015
On the ninth day of Christmas - An important update on the fundraising efforts of Save Our Sons through 2015

 

It has been another busy year for the hard-working folk of Save Our Sons.   The charity was founded in 2008 to raise funds and awareness of Duchenne Muscular Dystrophy (DMD), a form of muscular dystrophy characterised by aggressive muscle degeneration, leading to inability to walk and eventually death.

As the charity continues to raise much needed funds and awareness, their efforts have seen them able to contribute to a number of major breakthroughs in the areas of Synthetic Steroids, Utrophin Therapy and Nutritional Supplements.

Among the activities undertaken this year, Elie Eid, father and founder of charity Save Our Sons, commenced a 320km Walk to Save Our Sons from Save Our Sons Head Quarters in Dulwich Hill, Sydney to Parliament House, Canberra, pushing his 10-year-old son, Emilio in a wheelchair.  The Team was met by then Prime Minister, Mr Tony Abbott and Minister of Health and Sport Sussan Ley.  Elie said of the walk “The wheelchair symbolises the harsh reality that families like mine face. The wheelchair is where children with DMD end up and it is all we as parents are left with when our children suffering this fatal condition pass away at a young age”.

Other fund raising activities have included a Gala Ball, Golf Day and a Melbourne Cup Lunch.  Early 2016 will see the launch of a new fund raising initiative called the Save Our Sons  Easy Giving – Nurses campaign.  This campaign will help ensure there is a qualified registered nurse specialising in Duchenne Muscular Dystrophy in the Neurology Ward of Children’s Hospitals around Australia.   Save Our Sons are asking people to sign up for $5 a week (less than a cost of a cup of coffee a day) over a period of a year, this equates to $260 per person and is entirely tax deductible.  For every 385 people who sign up, just over $100,000 is raised, covering the cost of a full time qualified Duchenne Muscular Dystrophy nurse.

For more information, log on to the Save Our Sons website. 

With your help, Save Our Sons can continue to raise the much needed funds and awareness to win the fight against Duchenne Muscular Dystrophy and…SAVE OUR SONS.

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