Community support for Save Our Sons
A recent article in the Daily Telegraph caught our attention because it deals with something close to our hearts here at Dooley & Associates.
Save Our Sons is an amazing charity that raises awareness of Duchennes Muscular Dystrophy – a disease that kills 90% of young boys diagnosed with it before they reach their 20th birthday.
Elie Eid founded the charity Save Our Sons in 2009 after he discovered that his son Emilio was suffering from the disease. Elie first contacted us in late 2009 for assistance in setting up the charity. Since that time we have provided pro bono legal services to SOS. Throughout our relationship with SOS we have come to see Elie’s passion and tireless efforts in making a difference.
When people think of inspirational figures, they often think of those who have conquered feats such as scaling Mt Everest, however Elie, his son Emilo and their entire family climb their own mountains daily, without any fuss or fanfare. Duchenne muscular dystrophy (DMD) is a recessive form of muscular dystrophy, which results in muscle degeneration, difficulty walking, basic bodily functions such as breathing, and ultimately death. Studies have discovered 1 in 3,000 males are affected, though females can be carriers as well. Sadly, most patients are wheelchair dependent by age 12. Later symptoms may include abnormal bone development that lead to skeletal deformities, including curvature of the spine. Due to progressive deterioration of muscle, loss of movement occurs, eventually leading to paralysis. It is a constant battle against time for Elie and his team at SOS together with the families of those suffering from DMD having to travel this grueling path to ensure these children remain self sufficient without the need for a wheelchair and to be given the chance to survive.
So what can you do to make a difference?
Save Our Sons are committed to finding a cure and to support children with DMD. Every bit of support they receive counts - this is where you come in.
Dooley & Associates are inspired by Elie’s story and the SOS and remain a strong supporter of this charity. We are trying to lend a hand in any way we can. Together with our ongoing pro bono work for SOS we are also pleased to invite you to join us in helping make a difference in these children’s lives and help them put a smile on their faces. We are hosting a charity ball at Castle Hill RSL @ 7pm on Friday 29 July 2011 to raise awareness of this rare and lethal disease and much needed funds to help find a cure.Back